Sunday, March 27, 2016

Academic Life

Academic Ladies
While I attended Radford University for Speech and Hearing therapy, we had several professors, speech therapists, audiologists and students in the Speech and Hearing program that worked with me and my parents in developing better listening and language skills.
When I was three years old, I attended a pre-school program at Blacksburg High School, where I started receiving services from speech pathologists and teachers for the Deaf and Hard of Hearing.  There were a few times that student interns from Radford University came to my home to work with me.  
I was five years old when I completed my time at the pre-school program at Blacksburg High School. My parents enrolled me in a Montessori pre-school where I continued to receive services for my hearing loss.  Pat Jones worked with me developing language and listening skills.  She was the first Teacher for the Deaf and Hard of Hearing I had.  She used sign language with me to bridge spoken language (i.e. she signed preposition words to help me understand the differences of on, off, under, above, beside, etc.).
When I entered kindergarten, I had my first sign language interpreter with me half day.  Starting first grade, I had an interpreter throughout the day in all classes.  Ever since, I have used interpreting services for academic purposes.  Without interpreting services and the visual support, I would have had a harder time succeeding in my classes.  When I was a junior in high school, my interpreter was offered a different job position and decided to take it.  It was a struggle to find an interpreter who had the qualifications to match my needs.  After going through several interpreters, I felt that there was no one who was skilled enough for me.  I felt that I was better off focusing on my teachers and lip-reading.  I was provided with a note-taker in all of my classes since it was impossible for me to take notes and watch the teachers at the same time (I’m still trying to figure out how to make one eye look down at the paper and the other eye look at the instructor…I still haven’t mastered this). This was already an accommodation of mine even with interpreting services.  Keep in mind that lip-reading is a hard skill to acquire and I’m really good at it. However, this is one reason why sign language has been so beneficial for me, especially in educational settings in which I had sign language interpretation. This enabled me to access spoken language that I would have otherwise missed due to my hearing loss.
Not only did I have a sign language interpreter, but I also used an FM equipment coupled with my personal hearing aids.  Looking back, it’s kind of neat to see the evolution in the assistive listening devices I’ve used. My first FM equipment was body worn.  I had a small box that hung from my neck and strapped around my waist.  Then I remember switching to an FM that looked like a hearing aid with a small antenna sticking out.  Then I switched to a new FM where you attach the receivers to your hearing aids.  After 6th grade, I decided not to use the FM anymore as I wasn’t finding it useful.
I believe the most different thing my elementary teachers had to do was wear the equipment.  They had to learn how to utilize and troubleshoot the equipment as I was learning how to do this myself.  I know some of my teachers enjoyed wearing the FM because they loved to mess with me when they left the classroom. One of my teachers shared with me that she loved going out of the classroom and talking to the microphone “Kayla… this is God!” I’ve had teachers accidentally leaving the classroom and going to the bathroom with it on. I remember one time, a student got into trouble in class.  The teacher took them out into the hallway to have a discussion with him.  My friends came up closer to me and put their ears onto my ears so they could hear the discussion the teacher was having.  So many funny stories!!

I had an amazing teacher for the Deaf and Hard of Hearing, who is one of my idols. She is the only teacher I had growing up who allowed me to use her first name.  It’s so weird hearing “Mrs. Ritchie.”  I always called her “Miss Connie.”
Random fact:  I provided her with her personal sign name.  This woman is in love with chocolate.  If you know the sign for chocolate, you sign “chocolate” using the initials C transitioning to R.  I believe she still uses this sign to this day.
Anyways, back on point.  Miss Connie worked with me since day one in kindergarten all the way until I graduated high school.  She taught me almost everything I know.  Without her support, I honestly don’t know who I would be, where I would be, or what I would be like today.  She is the reason why I have great language skills including reading, writing, vocabulary, and comprehension.  She was a big advocate of mine and taught me how to advocate for my needs as I got older.  She fought the school system to give me the best of the best.  She always gave me highly qualified interpreters, made sure that my teachers understood my IEP,  gave me copies of their notes or powerpoints ahead of time, and so much more.  She invested a lot of time helping me develop strong language skills.  I remember meeting with her every day before school focusing on idioms, reading, playing language games and so forth.  There were times I disliked going, but looking back now, I am very happy with all of the support she’s given me.
To this day, Miss Connie is still very much involved in my life.  I have three favorite memories with her.
One is learning idioms with her. Thanks to her, and my goofy day, I’m able to understand and use figurative language, wit and sarcasm.
Another wonderful memory is learning that I was her first student she had consecutively, from Kindergarten to 12th grade. As part of my admission requirements for college, I had to write an essay on someone whom I admire the most.  I wrote my paper about her and printed it out.  I put it in a big frame and around the essay were school pictures of me from Kindergarten to 12th grade.  I’ll never forget the day I gave it to her.
Lastly, I remember her gift to me when I graduated Radford University.  I currently have it hanging on my wall.  This is a frame that has a beautiful quote: “One day I would teach just a few people many and beautiful things that would help them, when they will one day teach a few people.”  This is the most perfect gift I could have  receive from her, as I was becoming a teacher just like her.
I bet you right now as she is reading this, she’s probably rolling her eyes and being so humble. She truly is my biggest idol.
I had speech therapy for as long as I can remember. Mrs. Piersol is another wonderful person in my life. She worked with me from the time I was three years old until I finished 5th grade. She planned and made time to work with me. I think there were some supervisors who wanted her to stop working with me, but she fought and continued her services. She focused on my articulation and pronunciation, as well as the vocabulary and concepts that Miss. Connie and I didn’t have time for. Ms. Piersol also worked with and consulted with all of my classroom teachers. Without her support, I wouldn’t have the clear speech that I have today.
Another idol of mine is my American Sign Language (ASL) teacher, Ms. Ptak [you pronounce this name as Puh-tack.  She has so many nicknames: Ptak-Attack, Ptakular!, P-town, and so on]. She always had my back and did everything imaginable to help me feel accepted and find my identity.  She pushed me and worked my fingers to the bone in developing strong ASL skills. When a problem arose that was discriminatory against my hearing loss, she fought for me and taught me how to stand up for myself.  Often time, she would tell me that some people are not worth my time and that I should focus on the ones who love me for who I am. Multiple times throughout high school, she took me to Gallaudet University to visit.  
Remember I mentioned that my one interpreter took another job position?  Well, Ms. Ptak took on some interpreting for me in some of my high school classes.  On a side note, Ms. Ptak became my homebound teacher for two months when I was diagnosed with mono during my senior year.  She has interpreted for me outside of school at  events such as weddings and funeral services.  I like to call her my life-long interpreter; she still plays an important, active role in my life today.  
All of my academic teachers played an important role in my life as well.  They worked closely with Miss. Connie and made sure I succeeded in all of my classes.  I honestly don’t recall any of my teachers treating me differently from the other students.  They always made sure to provide my accommodations as per IEP requirements to make sure I had the best access in the classroom.
I can only think of a few teachers in high school that were really challenging to work with.  One teacher never took the time to look over my IEP and always gave me quizzes on videos that were not captioned.  This is very unfair because I was not able to understand the videos without the closed captioned/subtitles,  and I failed all my quizzes.  She refused to look into other videos that had the captioning/subtitles feature,  and she said that I had to depend on my interpreter.  This teacher was also very particular about seating arrangements, and wanted all of  her students in alphabetical order.  This meant my seat was in the back row.  She refused to have me in the front row in order to better access my sign language interpreter and have auditory access to her lectures.  After constant reminders and explanations, she finally complied with my IEP accommodations (although at this point, it was already over halfway through the school year).  
Another teacher of mine was hard to work with because he had really high expectations for me.  This was a dual-credit course, and he was a really tough teacher.  I was okay with the high expectations, but some of it was not appropriate due to my hearing loss.  I remember one time he told me I had to take notes myself, instead of using a note taker.  Another thing that was mentioned was that I had to pay attention better instead of missing out on things.
There were also a few teachers who needed constant reminders to follow my IEP accommodations, that included facing me when talking and not teaching with their backs to me as they wrote on the board. It was little things like that.  In spite of these challenges in high school, I still passed and graduated from high school with a high GPA.  
One of my favorite stories is about an art teacher telling me I couldn’t be an artist because I’m deaf. Looking back, I laugh at this because I have a minor in art,  and I went to New York for design. After this situation, we realized that this teacher was not budging and we decided to switch me out of this class.
Some of my favorite high school teachers (including Miss.Connie and Ms Ptak) were furious when they heard about these situations.  They  all taught me about my IEP and helped me understand the Americans with Disabilities Act (ADA), so that I actually understood my rights.  This was probably the first time I realized that what some of my teachers said and did made me find my “voice,”  become proactive, and stand up to those that were not complying with my IEP, or telling me I couldn’t do something because I was deaf.
All of these teachers made a huge impact on me.  I use their teaching styles and the comfort they provided  me with my  students today.  I cannot say how grateful I am to have been taught by them. I love that I'm FaceBook friends with most of them because I love being able to see what they're up to as well as share things with them. 

Saturday, March 12, 2016

Getting to know me...

Hello world!  
Kayla Price
My name is Kayla Price and I've grown up with a hearing loss.  I have amazing parents and three wacky brothers that I struggle to keep up with!  I am number 2 out of 4 kiddos. One of my brothers also has a hearing loss, although his experience is different from mine.



I grew up in Blacksburg, Virginia. I was known as a mini college-hopper: I went to Rochester Institute of Technology in New York for my freshman year, then transferred back home to New River Community College where I graduated with an Associates Degree, then I transitioned to complete my Bachelor's degree in Deaf Education at Radford University.  After graduating, I craved more.  I went to Gallaudet University and completed my Master's Degree in Advanced Studies: Deaf Education.  I landed a job immediately as a full time itinerant teacher for the Deaf and Hard of Hearing in Fairfax County Public Schools, Virginia.  I am currently completing my second year teaching. I work with a variety of students ranging from pre-school to high school, focusing on self-advocacy skills, language, reading, writing and other IEP goals.

I have to share because you'll probably see his name a lot in my future blogs. I am in a very exciting relationship with my boyfriend, Peter.  Things are looking pretty serious and I hope everything goes smoothly! I'm going to brag about him for a little bit here.  We met online and got to talking.  We were very interested in each other and wanted to meet.  I was a little nervous meeting him because I wasn't a big fan of online dating, and I'm meeting a complete stranger for the first time. I was told that he was nervous too, for the same reasons, but also because he wasn't sure how things would go due to my hearing loss.  He thought it was going to be challenging to communicate, even though he knew I use spoken language and sign language.  Our first date went smoothly, and we continued to see each other.  One our third date, Peter wanted to show me something.  He started signing the alphabet and some signs that he learned from an app on his phone.  I knew immediately that this guy was probably a keeper.  To this day, he continues to learn new signs and use it when communicating with me.  I cannot say how proud I am of him!

I am currently on my cochlear implant journey and I felt that posting a blog would be ideal to keep everyone in the loop.  I can't make any promises that I will be consistent and up to date with everything, but I'll try my best.  I actually started writing up everything just a few months ago, and being the procrastinator I am, I've decided to go ahead and actually PUBLISH my blog.

Let's get started, shall we?  Cue magical music, please!
Once upon a time, a little girl was brought into this world at 11:58pm on September 8, 1989....  
No?  I can see my friends reading this, giving me a look and saying "Really, Kayla? Only you would start out a blog like a fairy tale."  Okay, I'll be a little more serious now.
***
Growing up with a hearing loss has always had its ups and downs. Mostly, a ton of ups! The beauty of having a hearing loss helps define who I am today.  I am currently on my cochlear implant journey.
The beginning:
Before we get started, I’d like to share some background information on who I am.  I was identified with a hearing loss when I was two years and two months old. First off, I had a ton of ear infections when I was a baby.  When looking at my medical records, I counted eleven ear infections over an eighteen month time frame. This all happened before I became two-years old.  Second, my mom and grandmother knew something was wrong.  I only had one-word phrases and limited vocabulary.  I wasn’t responding to sounds like a two-year-old would.  From behind, people were calling me by my name and I never responded. You know…the typical things that parents experience when learning that there’s something wrong with their child’s hearing.
Appointments and understanding my hearing loss:
My parents took me to see my pediatrician.  After my mom expressed her concerns about my not hearing and responding to sounds, Dr. Hall proceeded to test me.  He had my mom place me in her lap facing the wall.  He took a bell that had a long handle and a metal ball then rang it on my right side. Then he rang it on my left side.  I didn’t move or anything. I didn’t move or respond until the third time he rang it. They think that rather than hearing something, I must have seen some kind of movement in the corner of my eye.  He referred me to an ENT (Ear, Nose and Throat) doctor nearby, and they proceeded with more testing.  Dr. Bishop looked inside of my ear and completed a tympanometry test.  This test measured if your middle ear bones are working appropriately, or if there is fluid in the middle ear.  He referred us to Radford University Speech and Hearing clinic where they did more testing. Radford University was able to determine that I had a hearing loss.  I was referred for an ABR (Auditory Brain Stem) test to confirm the hearing loss. For this assessment, a special computer measures how the hearing nerve responds to different sounds.  The ABR test confirmed that I had a hearing loss.
My parents started taking me to Radford University for clinical services.  When we first arrived there, my parents were informed that I was never going to be able to learn how to speak or hear.  The clinicians at Radford started introducing sign language to my parents and me.  Little did they know that hearing aids might benefit me?  I was two years and four months when I was given the opportunity to try out loaner hearing aids for the first time.  It was a battle at first with the hearing aids.  I was constantly screaming, ripping out my hearing aids, throwing them onto the floor and bolting off down the hall.  After relentless chasing, putting hearing aids back into my ears, and forcing me to wear them, I finally was able to understand sound.  My parents devoted a lot of time in transporting me to Radford University on a daily basis for speech and listening therapy; they felt that focusing on listening and spoken language would benefit me.  One morning, while sitting in my mom’s lap looking at a children’s book with mom reading and pointing out pictures, I started repeating a word, “Appi! Appi!” Tears rolled down my mom’s face because she knew I was hearing and understanding language.  At that point, I was able to associate the picture with the word and sound “apple”.   I was two and half years old when I was finally given a pair of personal hearing aids. Apparently, I disliked the new pair and constantly took them out, threw them and ran away--just like the first time I tried the loaner hearing aids.  I bet you it was because it was a different sound.  When I get new hearing aids, it takes time to get used to them since they’re different from the ones I was using.  Anyways, I was finally able to tolerate them after my parents fought to keep them on for two weeks.  I eventually started to like them and wanted to keep them on all the time, including bathtime and bedtime.


A funny side story:  when I was three years old, I was visiting my grandparents on my dad’s side.  I became frustrated with something and flushed my hearing aids down the toilet [I wish I remember, or knew, what I was frustrated about…].  All I can say is that they’re probably somewhere in the septic tank near my hometown and that my parents weren’t quite happy with me.
It wasn’t until I was in kindergarten when the audiologists were getting more specific and accurate results of my hearing.  Understand that testing children’s hearing losses can be harder than testing adults.  Play audiometry is utilized when testing babies since they don’t have the understanding to sit still and listen carefully.  Testing then, as now, revealed that I have a bilateral, severe to profound sensorineural hearing loss, that has remained pretty stable.
Let me break that down for you newbies:  bilateral means both sides (“bi” means two; “lateral” means sides). There are varying hearing levels starting with normal, mild, moderate, moderately severe, severe and profound.  Profound is the worst. Sensorineural means hearing loss in the inner ear or auditory nerve.  
With this type of hearing loss, I cannot hear a lot of sounds or spoken language without some kind of amplification.  Although my hearing aids amplify sound well enough to enable me to understand sound and spoken language in the moderate range, I still miss out on a lot of auditory information, and especially spoken language.  Sign language has been so beneficial to me, because through interpreters, I have been able to access spoken information, that I otherwise would have missed in the educational setting.